Hello everyone!
I know that some of you have been eagerly awaiting the results of Lynn's bone marrow biopsy but unfortunately the Doctor didn't have them yet. She will call Lynn as soon as she has them back from the lab and one of us will be sure to post an update then. We did find out though, that it is possible that there will still be some of the Waldenstrom's cells in the marrow as Lynn's body is still working through the transplant and getting all of the healthy cells developed. Dr. Shafey reassured us that this would be very normal and not to be concerned. Some time down the road (in another 3-6 months) they'll likely do one more biopsy to make sure all the cells are 'normal'.
Lynn gained more weight and is up to 55.6 Kg (about 122 pounds for the non-metric folks). Her blood counts are still below normal but holding steady. Again, the Doctor said this could stay this way for a few more months as the body rebuilds its cells and then they'll start on the upward path towards more normal levels. All is good :)
Some of the best news for Lynn today was that the Cyclosporin was discontinued - that was cause for a high-5!! This is the medicine that takes away from Lynn's appetite and is a bit smelly and oily - really not nice to take a couple of times a day. Because she doesn't have to take this medication, another one was discontinued (it was 3 times a day), so Lynn is down to two medicines, each just once a day. Hooray! These will still go on for several months, but it is definitely manageable.
Over the next few weeks, Lynn will be doing some further testing, scans, etc. to see how her body has managed through the transplant. Same tests as pre-transplant and just to make sure everything is okay.
That's it for today. Thanks again to everyone for the great wishes, thoughts and prayers along the way.
With love,
Irena
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