Things are starting to wind down on another day and on 2010. Today has been a really good day for Lynn - blood counts continue to be strong, she's starting to eat solid foods again and she's getting really close to being free of most of the IV medications - this will mean passes to go home. She had a good night's rest and has more energy today.
We've already been for a couple of walks. Nancy was in for a visit, and we're expecting Barb, Gail, Maureen, Pauline and Reina to be in to watch some of the hockey game and start some early celebrations.
This evening, Lynn and I will watch the movie 'The Queen' and then see what the evening brings.
Even though 2010 has had its challenges, the blessing has been in seeing all the love, encouragement and support that we've both received from family, friends and colleagues.
From both Lynn and I, have a wonderful New Year's Eve. Next blog post - 2011.
Irena
Friday, December 31, 2010
Thursday, December 30, 2010
Day +15 - Update
Lynn is quite tired today - just doesn't have the same kind of energy she's had the past couple of days. That's to be expected though as there will be ups and downs over the next while, we just have to be patient. The great news is that most of her blood counts are up. White cells and neutrophils are within normal range :) Even her hemoglobin went up to 104 which was a bit unexpected but headed in the right direction.
They did confirm that Lynn has a bacteria in her bloodstream - it is slow growing so it took a while to show in the cultures. The good news is that they already had her on the right antibiotic to help deal with it - so she'll be on that for another 10 days or so. They were able to discontinue the other antibiotic so one less IV med.
The next thing is to watch for signs of graft versus host disease (GVHD) - this is common with any type of transplant and we actually prefer to see some of it because that is part of what is helping to eliminate the cancer cells. The challenge for the doctors is managing the 'right' amount as excessive GVHD can cause lung and liver problems. We'll keep an eye on things and see how it goes.
Barb, Gail, Pauline and Maureen were up for a couple hours today. It's always good to see them and gives Lynn some company and entertainment during the day. All in all the days actually go by fairly quickly - even Lynn says so.
That's it for today. Everyone better get some rest in preparation for New Year's Eve.
Good night!
Irena
They did confirm that Lynn has a bacteria in her bloodstream - it is slow growing so it took a while to show in the cultures. The good news is that they already had her on the right antibiotic to help deal with it - so she'll be on that for another 10 days or so. They were able to discontinue the other antibiotic so one less IV med.
The next thing is to watch for signs of graft versus host disease (GVHD) - this is common with any type of transplant and we actually prefer to see some of it because that is part of what is helping to eliminate the cancer cells. The challenge for the doctors is managing the 'right' amount as excessive GVHD can cause lung and liver problems. We'll keep an eye on things and see how it goes.
Barb, Gail, Pauline and Maureen were up for a couple hours today. It's always good to see them and gives Lynn some company and entertainment during the day. All in all the days actually go by fairly quickly - even Lynn says so.
That's it for today. Everyone better get some rest in preparation for New Year's Eve.
Good night!
Irena
Day +15 - Bald is beautiful
You'll see that we have a new picture for Lynn's blog. As mentioned in some earlier posts, the chemo was taking full effect which meant Lynn was losing her hair. A couple of nights ago she decided enough was enough and we called the nurse in with the clippers to get the job done right. The first words Lynn said when she saw herself was that "I look just like David". David is Lynn's older brother (for those of you who don't know) and they do look a lot a like, especially now. David agreed with the comparison when he was in for a visit last night.
Given everything else she's going through, Lynn says the part about her hair is easy. It'll grow back in time and until then lots of toques and ball caps.
Yesterday afternoon they put her back on one litre of oxygen as she still can't hold her levels up high enough, especially when she's resting and sleeping. She's still trying to figure out the eating thing as she has some appetite but inevitably ends up with tummy troubles so she's just trying to go slow. The good thing is she is trying to eat and swallowing is getting easier.
I'll post more once I get to the hospital and get today's update. I'll also make sure that Lynn knows about all your words of encouragement. I know she's looking forward to being able to get onto a computer and read them herself.
Have a terrific day!
Irena
Given everything else she's going through, Lynn says the part about her hair is easy. It'll grow back in time and until then lots of toques and ball caps.
Yesterday afternoon they put her back on one litre of oxygen as she still can't hold her levels up high enough, especially when she's resting and sleeping. She's still trying to figure out the eating thing as she has some appetite but inevitably ends up with tummy troubles so she's just trying to go slow. The good thing is she is trying to eat and swallowing is getting easier.
I'll post more once I get to the hospital and get today's update. I'll also make sure that Lynn knows about all your words of encouragement. I know she's looking forward to being able to get onto a computer and read them herself.
Have a terrific day!
Irena
Wednesday, December 29, 2010
Day +14 - Two weeks since the transplant
Lots of good news today: Lynn's white cells doubled from yesterday and are up to 0.6. For the first time in a while she actually registered neutrophils (1.0). These are the cells that help fight infection and are a critical part of her immune system. Her platelets are up as well.
They've taken Lynn off of the continuous morphine and now it's just on demand when she needs it. Her pain is down and she's taking in more food with each meal.
They also removed her from the oxygen as she seems to be able to hold up her oxygen levels on her own now.
They're still monitoring her lungs as the chest x-ray showed some fluid, possibly pneumonia, so she continues on the broad spectrum antibiotics.
We don't want to get too far ahead of ourselves but these are all good signs. Lynn continues to be quite tired and does a lot of napping, but that's okay. The sleep isn't the most restful as the nurses are continuously in and out of the room doing her vital signs and giving her the IV meds.
Anyway, that's it for now. Thought I'd share the good news.
Have a great day!
Irena
They've taken Lynn off of the continuous morphine and now it's just on demand when she needs it. Her pain is down and she's taking in more food with each meal.
They also removed her from the oxygen as she seems to be able to hold up her oxygen levels on her own now.
They're still monitoring her lungs as the chest x-ray showed some fluid, possibly pneumonia, so she continues on the broad spectrum antibiotics.
We don't want to get too far ahead of ourselves but these are all good signs. Lynn continues to be quite tired and does a lot of napping, but that's okay. The sleep isn't the most restful as the nurses are continuously in and out of the room doing her vital signs and giving her the IV meds.
Anyway, that's it for now. Thought I'd share the good news.
Have a great day!
Irena
Tuesday, December 28, 2010
Day +13 - Heading in the right direction
Today has been a pretty good day for Lynn. Because she can't take any pills they have to run all of them through her IV so that means it runs steady from morning until mid-afternoon. The day nurses earn their keep in ensuring everything is running smoothly and on time.
No word yet on whether Lynn's cough and congestion is from fluids or an infection. They continue to run some broad spectrum antibiotics just in case. We're still waiting for the results of some blood cultures and yesterday's chest x-ray.
Her pain is getting better and she has better control of it with the morphine pump (although she's having some interesting dreams as a result :) When she's resting she's okay, it's talking and swallowing that are still difficult. There is a change though, in that she said she's starting to get her appetite back and has tried a little bit of soft fruit or yogurt and something to drink with each meal. Once her white cell counts reach 1.0, the nurse said her mouth and throat will start to heal and she should be able to eat and drink more readily.
Today Lynn received a GSVF (?) injection - it helps to boost the production of stem cells so that they start growing and pushing out of her bone marrow and into her blood stream. This is the same injection that Susan received when she was being prepared for her donation. Lynn's white cell counts have gone up by 0.1 each of the past two days and we're hoping to see this go a bit faster her as we approach two weeks post-transplant. Her platelets are increasing since her last top-up (on the 26th) - all good news.
Her hair continues to fall out and she's promised herself not to let it get too patchy so we may be using the clippers in the next day or so.
Otherwise, her spirits are improving and she's hoping to be strong enough to at least get out on pass for a few hours this weekend.
Thank you for all of the comments, e-mails and calls. They make a world of difference.
With love,
Irena
No word yet on whether Lynn's cough and congestion is from fluids or an infection. They continue to run some broad spectrum antibiotics just in case. We're still waiting for the results of some blood cultures and yesterday's chest x-ray.
Her pain is getting better and she has better control of it with the morphine pump (although she's having some interesting dreams as a result :) When she's resting she's okay, it's talking and swallowing that are still difficult. There is a change though, in that she said she's starting to get her appetite back and has tried a little bit of soft fruit or yogurt and something to drink with each meal. Once her white cell counts reach 1.0, the nurse said her mouth and throat will start to heal and she should be able to eat and drink more readily.
Today Lynn received a GSVF (?) injection - it helps to boost the production of stem cells so that they start growing and pushing out of her bone marrow and into her blood stream. This is the same injection that Susan received when she was being prepared for her donation. Lynn's white cell counts have gone up by 0.1 each of the past two days and we're hoping to see this go a bit faster her as we approach two weeks post-transplant. Her platelets are increasing since her last top-up (on the 26th) - all good news.
Her hair continues to fall out and she's promised herself not to let it get too patchy so we may be using the clippers in the next day or so.
Otherwise, her spirits are improving and she's hoping to be strong enough to at least get out on pass for a few hours this weekend.
Thank you for all of the comments, e-mails and calls. They make a world of difference.
With love,
Irena
Monday, December 27, 2010
Day +12 - On the right track
We saw the doctor this morning and he said that things seem to be on track. There is still concern whether or not Lynn's congestion and cough are related to an infection or simply the fluid they've been giving her. She's gained about 15 pounds in the past week even though she hasn't eaten anything. They continue to give her Lasix to help her get rid of some of it and it seems to be working as her weight at least stayed the same from yesterday to today.
Her spirits seem to be improving and she's starting to think about at least trying to eat some softer foods like canned peaches. She was able to get a few small pieces down this morning so that's a good sign. Her jaundice colour has improved as well and the nurse told us that although still high her liver function test results have come down which is good.
We expect to see the new stem cells kick in and start producing new white cells, etc. in the next few days. At that time, the doctor said Lynn's throat pain should subside as the body is once again producing healthy cells. Lets keep our fingers crossed that things continue to go as expected.
Reina stopped by for a visit this afternoon and that gave me a chance to go and do some errands.
I'll publish another post if there's anything new when I get back to the hospital, otherwise more updates tomorrow.
Take care.
Irena
Her spirits seem to be improving and she's starting to think about at least trying to eat some softer foods like canned peaches. She was able to get a few small pieces down this morning so that's a good sign. Her jaundice colour has improved as well and the nurse told us that although still high her liver function test results have come down which is good.
We expect to see the new stem cells kick in and start producing new white cells, etc. in the next few days. At that time, the doctor said Lynn's throat pain should subside as the body is once again producing healthy cells. Lets keep our fingers crossed that things continue to go as expected.
Reina stopped by for a visit this afternoon and that gave me a chance to go and do some errands.
I'll publish another post if there's anything new when I get back to the hospital, otherwise more updates tomorrow.
Take care.
Irena
Sunday, December 26, 2010
Day +11 - Seems to be doing better
Lynn seems to be doing a bit better today and got stronger as the day went on. The doctor gave her half of the dose of methotrexate (chemo) because of the degree of mucositis and the swelling/fluid retention. The nurse explained that they often scale back the final dose if the patient is reacting as Lynn has. From what we understand, that's it for that drug.
We were able to get Lynn up and showered, and she even did a couple of laps on the unit. She was able to talk a bit more but isn't yet able to swallow much or eat. Again, the nurse said this is not uncommon at this stage of the game and given the severity of Lynn's mucositis. During the evening she was unhooked from the morphine pump for 1.5 hours and seemed to do well as her pain held steady at a 2 which is fairly low. Here's hoping she has a good night and things continue to progress.
Her blood counts continue to be low so she received another unit of platelets (she had some yesterday too) as her counts are only 8 (I believe normal is above 150). She also received two units of blood as her hemoglobin dropped to 71 (normal is about 120 but Lynn hasn't been much higher than 100 since she started her first round of chemo in the fall of 2009). We're still waiting on some blood test results from Christmas eve as Lynn had spiked a fever and had a racing heart beat. They've again put her on prophylactic antibiotics until those results come back. Since then, her temperature and heart rate have been normal. She's also been on oxygen as her saturation levels had been dropping to 86-87% (normal is 97-99%).
We can tell that the chemo is working as Lynn is starting to lose her hair. The shower or brushing it just takes it out in clumps - she seems okay with it though. We knew it was a possibility.
I know that Lynn is feeling a bit better as she was joking a bit with her Mom today and we were able to have a few laughs throughout the day. Lynn's Mom flew back to Ontario today and it was terrific that they were able to get in one more visit. Marg came in with David, Maddie and Molly for about an hour before they took her to the airport.
That's it for today. It definitely felt like a better day.
'Til tomorrow.
Irena
We were able to get Lynn up and showered, and she even did a couple of laps on the unit. She was able to talk a bit more but isn't yet able to swallow much or eat. Again, the nurse said this is not uncommon at this stage of the game and given the severity of Lynn's mucositis. During the evening she was unhooked from the morphine pump for 1.5 hours and seemed to do well as her pain held steady at a 2 which is fairly low. Here's hoping she has a good night and things continue to progress.
Her blood counts continue to be low so she received another unit of platelets (she had some yesterday too) as her counts are only 8 (I believe normal is above 150). She also received two units of blood as her hemoglobin dropped to 71 (normal is about 120 but Lynn hasn't been much higher than 100 since she started her first round of chemo in the fall of 2009). We're still waiting on some blood test results from Christmas eve as Lynn had spiked a fever and had a racing heart beat. They've again put her on prophylactic antibiotics until those results come back. Since then, her temperature and heart rate have been normal. She's also been on oxygen as her saturation levels had been dropping to 86-87% (normal is 97-99%).
We can tell that the chemo is working as Lynn is starting to lose her hair. The shower or brushing it just takes it out in clumps - she seems okay with it though. We knew it was a possibility.
I know that Lynn is feeling a bit better as she was joking a bit with her Mom today and we were able to have a few laughs throughout the day. Lynn's Mom flew back to Ontario today and it was terrific that they were able to get in one more visit. Marg came in with David, Maddie and Molly for about an hour before they took her to the airport.
That's it for today. It definitely felt like a better day.
'Til tomorrow.
Irena
Early Update - Day +11
Lynn received the results on her liver ultrasound - they didn't find any clots, which is good news but there are some blood vessels (?) that they're going to monitor. The chemo puts great strain on the liver and kidneys as there is a lot of cell waste that is being created and must be processed by the body. Her kidney function results (creatinine levels) have been normal but they continue to monitor both. Lynn didn't have any pain when the doctor was pushing on her liver so that's a good sign. She's still yellowish in color, though.
She also had some Lasix yesterday (diuretic) as she was starting to puff up from retaining fluids. She's gained about 4-5 Kg in the past few days. It seemed to help by the evening as she wasn't looking quite as swollen. We're also hoping it will help her lungs as she's quite congested. They sent her for a chest x-ray yesterday morning which showed some fluid build up in her right lung and around her heart. I'll get an update on this later today.
Otherwise, she continues to struggle with the pain and getting some sort of consistent pain control - even with the pump. Talking and swallowing continue to be near impossible so we're getting pretty good at some sign language when she needs something.
The doctor mentioned yesterday that they may not give her the dose of methotrexate that is due today because of some of these symptoms. Although they're relatively normal, they're starting to be at levels that are causing some concern.
Last night we were able to get Lynn showered and up for a walk. Her back is starting to get sore from spending so much time in bed. This seemed to perk her up a bit and she got through opening the rest of her presents. The Kobo e-reader from her Mom was a big hit and I've been instructed to bring it back today so we can figure out how to use it (LibraryKaren - Lynn thought of you when she received it - she also received some 'real' books so things are still okay for now :). She also quickly put out her 'healing angel' from my Dad's family and keeps it by her bedside. There are many thank you's to be said and shared which will be coming from Lynn when she's feeling better.
Final note: Lynn has quite enjoyed all of the Christmas and colourful socks that she's received from many of you over the past few weeks. She loves showing them off and always gets quite the comments from the doctors and nurses when they're doing her pedal pulses. It's been a great pick me up for her and the staff!
Today is Lynn's Mom's last day here in Calgary before she heads home to Barrie. I believe that David is going to get her to the hospital for a visit before she flies out. I'll post another update later today when I see how Lynn is doing.
Happy Boxing Day!
Irena
She also had some Lasix yesterday (diuretic) as she was starting to puff up from retaining fluids. She's gained about 4-5 Kg in the past few days. It seemed to help by the evening as she wasn't looking quite as swollen. We're also hoping it will help her lungs as she's quite congested. They sent her for a chest x-ray yesterday morning which showed some fluid build up in her right lung and around her heart. I'll get an update on this later today.
Otherwise, she continues to struggle with the pain and getting some sort of consistent pain control - even with the pump. Talking and swallowing continue to be near impossible so we're getting pretty good at some sign language when she needs something.
The doctor mentioned yesterday that they may not give her the dose of methotrexate that is due today because of some of these symptoms. Although they're relatively normal, they're starting to be at levels that are causing some concern.
Last night we were able to get Lynn showered and up for a walk. Her back is starting to get sore from spending so much time in bed. This seemed to perk her up a bit and she got through opening the rest of her presents. The Kobo e-reader from her Mom was a big hit and I've been instructed to bring it back today so we can figure out how to use it (LibraryKaren - Lynn thought of you when she received it - she also received some 'real' books so things are still okay for now :). She also quickly put out her 'healing angel' from my Dad's family and keeps it by her bedside. There are many thank you's to be said and shared which will be coming from Lynn when she's feeling better.
Final note: Lynn has quite enjoyed all of the Christmas and colourful socks that she's received from many of you over the past few weeks. She loves showing them off and always gets quite the comments from the doctors and nurses when they're doing her pedal pulses. It's been a great pick me up for her and the staff!
Today is Lynn's Mom's last day here in Calgary before she heads home to Barrie. I believe that David is going to get her to the hospital for a visit before she flies out. I'll post another update later today when I see how Lynn is doing.
Happy Boxing Day!
Irena
Saturday, December 25, 2010
Merry Christmas!
We wish you a merry Christmas...
We wish you a merry Christmas...
We wish you a merry Christmas and a happy new year!
From Lynn & Irena
Santa managed to find Lynn here on Unit 57. She got through a few presents before needing a nap this morning. David's family and Lynn's Mom were in for a visit this afternoon. Otherwise, she's just trying to get some rest.
My Mom cooked a great Christmas dinner today. It was nice to have them up here for the holidays.
I'll post a full update tomorrow.
Take care.
Irena
We wish you a merry Christmas...
We wish you a merry Christmas and a happy new year!
From Lynn & Irena
Santa managed to find Lynn here on Unit 57. She got through a few presents before needing a nap this morning. David's family and Lynn's Mom were in for a visit this afternoon. Otherwise, she's just trying to get some rest.
My Mom cooked a great Christmas dinner today. It was nice to have them up here for the holidays.
I'll post a full update tomorrow.
Take care.
Irena
Friday, December 24, 2010
'Twas the night before Christmas...
Day +9 for Lynn today - the challenges with the mucositis continue. Her cheeks and face are quite swollen now. The doctor had an ultrasound of her liver done today as she's getting a bit jaundiced. Also had to have some blood and platelets as both counts were very low. All expected stuff at this point in the post-transplant process.
David, Marg, Molly and Sam were in for a visit today. Barb and Gail stopped by briefly as well. My folks are up for the holidays so we also spent some time with Lynn later in the afternoon. All in all, she had a busy day and was looking kind of tired when we left. I'll be heading back shortly to help her get settled for the night and so she's ready for Santa's arrival :)
Merry Christmas to all...and to all a good night!
Irena
David, Marg, Molly and Sam were in for a visit today. Barb and Gail stopped by briefly as well. My folks are up for the holidays so we also spent some time with Lynn later in the afternoon. All in all, she had a busy day and was looking kind of tired when we left. I'll be heading back shortly to help her get settled for the night and so she's ready for Santa's arrival :)
Merry Christmas to all...and to all a good night!
Irena
Thursday, December 23, 2010
Day +8 - A tough day
Lynn's Mom and Dave were by this afternoon for a visit. Barb stopped by this evening. Although Lynn couldn't say much and tends to sleep, she always appreciates the visits.
It was a tough day for Lynnie as the mucositis continues to get worse. She had reasonable pain control today as they adjusted the morphine to be a steady flow and Lynn can press the PCA pump for a top up as needed. She was less distressed today but was able to say fewer words and swallowing has become difficult. The good news is that she only has a few meds that must still be taken orally - everything else is now done through the IV. Eating now consists of sherbet, yogurt and smoothies. Anything that she can do to try and get some nutrients and calories - her weight though, is holding steady for now.
We did manage to have a few laughs - the old Christmas tune "I want a hippopotamus for Christmas" made us both laugh when I played it for her on my iPod (you can blame me if you get the ear worm for this song over the next few days - I can't seem to get it out of my head now :) David also made sure he got Lynn to chuckle a couple of times. Although it hurts, it seems to help Lynn's spirit and take her mind off things at least for a few moments.
Between me and my folks, our friends here in Calgary, and David's family and Marg, we're working to ensure Lynn has lots of company over Christmas. Even though she sleeps and can't say much, she enjoys having someone in the room.
A big thank you for all the comments and words of encouragement. I make sure to tell Lynn about each of them - and she often asks as well.
Have a wonderful Christmas Eve day!
Irena
It was a tough day for Lynnie as the mucositis continues to get worse. She had reasonable pain control today as they adjusted the morphine to be a steady flow and Lynn can press the PCA pump for a top up as needed. She was less distressed today but was able to say fewer words and swallowing has become difficult. The good news is that she only has a few meds that must still be taken orally - everything else is now done through the IV. Eating now consists of sherbet, yogurt and smoothies. Anything that she can do to try and get some nutrients and calories - her weight though, is holding steady for now.
We did manage to have a few laughs - the old Christmas tune "I want a hippopotamus for Christmas" made us both laugh when I played it for her on my iPod (you can blame me if you get the ear worm for this song over the next few days - I can't seem to get it out of my head now :) David also made sure he got Lynn to chuckle a couple of times. Although it hurts, it seems to help Lynn's spirit and take her mind off things at least for a few moments.
Between me and my folks, our friends here in Calgary, and David's family and Marg, we're working to ensure Lynn has lots of company over Christmas. Even though she sleeps and can't say much, she enjoys having someone in the room.
A big thank you for all the comments and words of encouragement. I make sure to tell Lynn about each of them - and she often asks as well.
Have a wonderful Christmas Eve day!
Irena
Wednesday, December 22, 2010
Day +7 - No more passes
Today is one week since the transplant took place. Lynn's sister Susan sent us a note that although still a bit tired, she's feeling better each day.
Lynn is starting to experience the full effects of the mucositis. She had a restless night as she was only mildly able to control the pain in her mouth and throat. As soon as we arrived today, the nurse gave her some IV morphine and she is now on a PCA pump so that she can dispense her own doses as she needs them. Her mouth is quite swollen and eating and talking are difficult. Chocolate banana smoothies are her breakfast of choice and egg salad seems to still work for lunch as it is soft and easier to chew.
Because she's hooked up to the pump, she will now be staying in hospital. The mucositis is expected to last 10 days or so. Being here where the nurses can help her is best. If she gets any opportunities to get out even for a few hours, we'll make sure she gets to take in some fresh air.
Lynn's Mom and her sister in-law were here for a visit. It helps to keep Lynn's spirits up when she has someone with her. She is managing fairly well, all things considered.
Irena
Lynn is starting to experience the full effects of the mucositis. She had a restless night as she was only mildly able to control the pain in her mouth and throat. As soon as we arrived today, the nurse gave her some IV morphine and she is now on a PCA pump so that she can dispense her own doses as she needs them. Her mouth is quite swollen and eating and talking are difficult. Chocolate banana smoothies are her breakfast of choice and egg salad seems to still work for lunch as it is soft and easier to chew.
Because she's hooked up to the pump, she will now be staying in hospital. The mucositis is expected to last 10 days or so. Being here where the nurses can help her is best. If she gets any opportunities to get out even for a few hours, we'll make sure she gets to take in some fresh air.
Lynn's Mom and her sister in-law were here for a visit. It helps to keep Lynn's spirits up when she has someone with her. She is managing fairly well, all things considered.
Irena
Tuesday, December 21, 2010
Day +6
Lynn was allowed to go home on pass again today. It was a longer day at the hospital as she had to have some IV magnesium and get her methotrexate (chemo/immunosuppressant). The side effects of the transplant and chemo are becoming more evident each day. Lynn's white cells were down to 0.1 today which means she's highly susceptible to infection.
As expected, her mouth and throat are starting to get very sore and talking and eating are becoming more difficult. The doctor gave her some 'Pink Lady' to take home today to help alleviate the pain and give her a chance to eat. A Pink Lady is a mix of Maalox or Pepto Bismol and lidocaine so it literally numbs her throat so that she can eat. I remember giving these to patients in the Emergency when I was a nursing student. They do work so hopefully that will help.
Reina and Betty came for a 'wee' visit last night. Brought some shortbread cookies and butter tarts - yum! Lynn still seems to have an appetite for some holiday sweets so that's good. Tonight will be one of rest for Lynn and we'll see what tomorrow brings. The nurse gave her two days worth of take home meds so we're hoping that she'll get at least one more night at home before she has to stay in the hospital.
Irena
As expected, her mouth and throat are starting to get very sore and talking and eating are becoming more difficult. The doctor gave her some 'Pink Lady' to take home today to help alleviate the pain and give her a chance to eat. A Pink Lady is a mix of Maalox or Pepto Bismol and lidocaine so it literally numbs her throat so that she can eat. I remember giving these to patients in the Emergency when I was a nursing student. They do work so hopefully that will help.
Reina and Betty came for a 'wee' visit last night. Brought some shortbread cookies and butter tarts - yum! Lynn still seems to have an appetite for some holiday sweets so that's good. Tonight will be one of rest for Lynn and we'll see what tomorrow brings. The nurse gave her two days worth of take home meds so we're hoping that she'll get at least one more night at home before she has to stay in the hospital.
Irena
Monday, December 20, 2010
Day +5
Back to the hospital by 8:00 this a.m. for my daily blood work. No traffic, everyone must be on holiday already. All the tests were ok so the doc ok'd another overnight pass. I'm at the stage now where my neutrofils are so low they don't register, so have to be even more careful to avoid germs. The nurses do a great job of packaging up all my meds and writing on each one when I have to take them. One of them causes susceptibility to sunburn; lucky it's -16C here so no temptation to put on my bikini! Looking forward to supper at home and sleeping in my own beddy byes tonight. Lynn
Sunday, December 19, 2010
Day +4 - Evening
Lynn was sprung mid-morning and almost ran the doctor over getting out of the place. Had a great visit and lunch at David and Nancy's (her brother's family), along with Maddie, Molly, Susan and their Mom. Susan flew home this afternoon - she's doing well after the apheresis - a big thank you to her!
This afternoon, Barb and Gail came to 'adult-sit' as Lynn can't be left alone when we're home. That gave me a chance to get some groceries and do some running around. She's also not allowed in public places so it limits where she can go. They had a good afternoon of some snoozing and a movie, then we had a nice dinner together.
Lynn's a bit more tired today - needs to drink lots of fluids. She's also starting to get some of the signs of mucositis which is expected and a part of the post-transplant side effects. Although it likely won't be easy to deal with, it confirms that the transplant is working as the body is starting to fight the 'foreign' cells. Once it takes full effect, Lynn will have to stay in the hospital for a number of days so that they can help her manage it. The doctor was already talking to her about that today.
She's now getting settled for another enjoyable evening in her own bed and at home. That's it for today.
From both of us, have a good night!
Irena
This afternoon, Barb and Gail came to 'adult-sit' as Lynn can't be left alone when we're home. That gave me a chance to get some groceries and do some running around. She's also not allowed in public places so it limits where she can go. They had a good afternoon of some snoozing and a movie, then we had a nice dinner together.
Lynn's a bit more tired today - needs to drink lots of fluids. She's also starting to get some of the signs of mucositis which is expected and a part of the post-transplant side effects. Although it likely won't be easy to deal with, it confirms that the transplant is working as the body is starting to fight the 'foreign' cells. Once it takes full effect, Lynn will have to stay in the hospital for a number of days so that they can help her manage it. The doctor was already talking to her about that today.
She's now getting settled for another enjoyable evening in her own bed and at home. That's it for today.
From both of us, have a good night!
Irena
Dec. 19th - Day +4
Good morning!
We're back here at the Tom Baker for blood tests, etc. Lynn had a pretty good night at home and we're hoping for another pass here shortly. The meds are helping with her tummy troubles and she's still eating fairly well. The only physical sign so far of the transplant is her mouth is starting to feel a bit 'thick'. All very normal so far - that's what we like to hear.
Have a great Sunday!
Irena
We're back here at the Tom Baker for blood tests, etc. Lynn had a pretty good night at home and we're hoping for another pass here shortly. The meds are helping with her tummy troubles and she's still eating fairly well. The only physical sign so far of the transplant is her mouth is starting to feel a bit 'thick'. All very normal so far - that's what we like to hear.
Have a great Sunday!
Irena
Saturday, December 18, 2010
Day +3
The patient was finally sprung early this afternoon and got going before they could change their minds. The doctor wouldn't let her go last night as her white cell count was down and they didn't have the final results of some blood tests. Today they were able to discontinue the IV antibiotics and her test results were fine, so off she went.
Lynn had a bit more tummy trouble last night but that now seems to be under control - all of this is very normal post chemo and transplant. She received some new meds to help prevent some of that from happening so we'll see how it goes.
The two units of blood have definitely given her some energy and colour. The nurse told us today that this will go up and down for the next while.
Susan and Marg came home with us for a visit this afternoon as Susan heads back to Toronto tomorrow.
Lynn is looking forward to sleeping in her own bed and having some peace and quiet for the night (imagine, the nurses keep checking on her :).
Anyway, there'll be more news to come over the next days. Sending our love back out to all of you.
Irena
Lynn had a bit more tummy trouble last night but that now seems to be under control - all of this is very normal post chemo and transplant. She received some new meds to help prevent some of that from happening so we'll see how it goes.
The two units of blood have definitely given her some energy and colour. The nurse told us today that this will go up and down for the next while.
Susan and Marg came home with us for a visit this afternoon as Susan heads back to Toronto tomorrow.
Lynn is looking forward to sleeping in her own bed and having some peace and quiet for the night (imagine, the nurses keep checking on her :).
Anyway, there'll be more news to come over the next days. Sending our love back out to all of you.
Irena
Friday, December 17, 2010
Dec. 17 - Day +2
Hi all. Haven't been able to spring myself out of here but still hoping I can get an overnight pass. I had some reactions to the chemo last night so it was a long night. The dr's waiting for test results so still a possibility. My hemoglobin is dropping, as expected, so received two units of blood today which sure boosts the energy levels. Pretty quiet on the unit tonight. I guess anyone who could get out for the weekend is gone. Nice to have a few visitors today including Reina and my sister & Mom. Lynn
Thursday, December 16, 2010
Day +1 - Dec. 16th
Although Lynn is doing really well, she's not allowed to hang out in the common areas so I'll give today's update. She settled down after yesterday's fever and chills and is doing quite well today other than being a bit sore from all of the shivering. Even her nurse said that she's looking great. (A huge shout out to the nurses here on Unit 57 as they've all been wonderful!!)
Shortly, she'll get a new drug, Methotrexate, which will help with the anti-rejection (I think - all the meds are starting to get a bit confusing). They have to wait 24 hours post transplant for this first dose. Then she gets 3 more doses over the next 4-5 days. Lynn's spirits are good and she's really hoping that they'll spring here free tomorrow night for a couple of days. We had hoped for tonight but they're making sure that the fever/chills were not a sign of infection before they'll let her go. Fingers crossed that she'll be able to come home for a break.
Nancy, Susan and Marg (Lynn's Mom) were in for a visit today. Susan managed to get some well deserved rest and is feeling much better. Her check up today was good, so that should be it for her part. Marg just arrived last night and is staying through to the 26th.
Thanks again for all of the well wishes, prayers and good vibes. Have a good night!
Irena
Shortly, she'll get a new drug, Methotrexate, which will help with the anti-rejection (I think - all the meds are starting to get a bit confusing). They have to wait 24 hours post transplant for this first dose. Then she gets 3 more doses over the next 4-5 days. Lynn's spirits are good and she's really hoping that they'll spring here free tomorrow night for a couple of days. We had hoped for tonight but they're making sure that the fever/chills were not a sign of infection before they'll let her go. Fingers crossed that she'll be able to come home for a break.
Nancy, Susan and Marg (Lynn's Mom) were in for a visit today. Susan managed to get some well deserved rest and is feeling much better. Her check up today was good, so that should be it for her part. Marg just arrived last night and is staying through to the 26th.
Thanks again for all of the well wishes, prayers and good vibes. Have a good night!
Irena
Wednesday, December 15, 2010
December 15th - Transplant Complete
Just wanted to let everyone know that the transplant was completed early this evening. For the most part, Lynn handled it well - just a bit of flushing and nasal congestion towards the end of it. Susan and David were both there when it was started - it was nice for Susan to see the process full circle. She's was pretty tired though, so they headed home shortly after the infusion began.
Barb and Gail stopped by for a visit and small celebration - the nurses said that this will be Lynn's 2nd birthday as tomorrow will be Day +1. Of course, her and Gail were both excited by the fact that they'll have yet another birthday to celebrate :)
A little later in the evening, Lynn developed some chills and a fever. It's likely that it was actually from the ATG drug that she received in the morning and not the stem cells. Some Tylenol and some antibiotics to make sure that she can fight off any possible infections, along with several blankets, helped to settle her back down. (Note: today her neutrophils were virtually non-existent and her white cells were 0.4 - the chemo and other drugs had done their job and her immune system was suppressed).
Hopefully she gets some rest tonight and we'll see what tomorrow brings. Good night!
Irena
Barb and Gail stopped by for a visit and small celebration - the nurses said that this will be Lynn's 2nd birthday as tomorrow will be Day +1. Of course, her and Gail were both excited by the fact that they'll have yet another birthday to celebrate :)
A little later in the evening, Lynn developed some chills and a fever. It's likely that it was actually from the ATG drug that she received in the morning and not the stem cells. Some Tylenol and some antibiotics to make sure that she can fight off any possible infections, along with several blankets, helped to settle her back down. (Note: today her neutrophils were virtually non-existent and her white cells were 0.4 - the chemo and other drugs had done their job and her immune system was suppressed).
Hopefully she gets some rest tonight and we'll see what tomorrow brings. Good night!
Irena
Day 0 - Transplant Day
Susan just finished up with the apheresis unit and had a good day with the stem cell harvest. 300 million plus cells are just being prepared for the transplant. It was a bit of a long day but she did extremely well. The temporary central line is out and she's now with Lynn and I as we await the actual infusion of the cells.
Lynn had a good day today. Lots of meds and stuff in the morning, and once she was set free from the IV was able to get up and about for a bit. Her spirits are up and they're just getting her ready for the transplant.
Thanks for all of the good wishes. We'll keep you posted.
Irena
Lynn had a good day today. Lots of meds and stuff in the morning, and once she was set free from the IV was able to get up and about for a bit. Her spirits are up and they're just getting her ready for the transplant.
Thanks for all of the good wishes. We'll keep you posted.
Irena
Tuesday, December 14, 2010
Dec 14, T-1
Well it was a good thing I planned to stay in hospital last night. About half hour after Irena left I had a temperature of 38.6. High temp is usually a side effect of the ACT drug but to be safe more blood tests and a chest xray are taken. So it would have been a short trip home. All is well today so hopefully no more fevers tonight. The blood vials they fill for culturing are the size of bingo daubers so I'm not sure I have that much to give up again.
Saw my sister after her appt. We had time for a nice long visit because her stem cell levels are so good already that she didn't get her booster shot today. She has a few aches from the bulging stem cells filling her marrow I guess but just takes Tylenol. She'll be about 4 or 5 hours tomorrow so I should be able to pop down to visit her. She'll be on the floor below. Then after she finishes her collection they bring it up and inject it into me, which only takes about 1/2 hour. Then the fun begins.
Had a nice visit with Barb this aft.
Thanks for the comments posted. Feel free to add in anything or ask questions you like. 'Til tomorrow.
Saw my sister after her appt. We had time for a nice long visit because her stem cell levels are so good already that she didn't get her booster shot today. She has a few aches from the bulging stem cells filling her marrow I guess but just takes Tylenol. She'll be about 4 or 5 hours tomorrow so I should be able to pop down to visit her. She'll be on the floor below. Then after she finishes her collection they bring it up and inject it into me, which only takes about 1/2 hour. Then the fun begins.
Had a nice visit with Barb this aft.
Thanks for the comments posted. Feel free to add in anything or ask questions you like. 'Til tomorrow.
Monday, December 13, 2010
Dec. 13, D-2.
Chemo is going well although a very long day in hospital. Now they've started the 'rabbit drug', ATG; it's made from rabbits. Hopefully I'll not have any reactions to it. But they keep you in hospital overnight as you sometimes start out ok but start to feel lousy in the middle of the night. So better to already be in hospital than to have to drive in the cold and dark. The food is fairly bland although the egg salad sandwiches weren't bad today. Susan stopped by this morning. Shot #3 went ok although the clinic is a more hectic place than where she came on my floor on the weekend. I'm trying to walk around the unit as much as I can so the physiotherapist doesn't give me heck. Got to keep the muscles and lungs working. All is going well so far.
Sunday, December 12, 2010
Day -3 to Transplant
It was another relatively quick day at the hospital today. In at 7:30ish and out around 1:00 o'clock. Just the two chemo drugs today and Lynn continues to be on 24-hour fluids so the big bag of saline and the pump are still with her tonight.
As for how she's feeling, it appears that the chemo is starting to take effect as Lynn was having some tummy troubles this afternoon. Gravol seems to have helped settle things down and she's been napping most of the afternoon. Tomorrow is the last day of the Fludarabine and Busulfan, but she also starts the ATG so we'll see how that goes.
The doctor confirmed that she'll start spending the night at the hospital tomorrow and then it all depends on how she feels as to whether or not she'll get to come home some nights afterwards.
Susan, David and Nancy stopped by for a visit today. Susan had her second booster shot and for the most part was feeling okay. Not sure if it's the shots or the altitude here in Calgary that were making her a bit under the weather.
Have a great evening!
Irena
As for how she's feeling, it appears that the chemo is starting to take effect as Lynn was having some tummy troubles this afternoon. Gravol seems to have helped settle things down and she's been napping most of the afternoon. Tomorrow is the last day of the Fludarabine and Busulfan, but she also starts the ATG so we'll see how that goes.
The doctor confirmed that she'll start spending the night at the hospital tomorrow and then it all depends on how she feels as to whether or not she'll get to come home some nights afterwards.
Susan, David and Nancy stopped by for a visit today. Susan had her second booster shot and for the most part was feeling okay. Not sure if it's the shots or the altitude here in Calgary that were making her a bit under the weather.
Have a great evening!
Irena
Saturday, December 11, 2010
Day -4 to Transplant
Time for another update on the patient. So far the Busulfan and Fludarabene treatments have been going well. Lynn (and Gail) had a real long day at the hospital yesterday as they didn't get home until 8:30 pm or so. Both were troopers.
A couple of interesting notes - so far Lynn and her baby (the mega-bag of saline that she gets to lug around) are doing fine. Anything it takes so that she doesn't have to stay over night is fine by her - Gail almost got run over when it was time to go home last night. I forgot to warn her that when Lynn gets to go, she goes fast so they don't change their minds and keep her.
Some of the meds that Lynn has to take also make for interesting conversation. One of the possible side effects of Busulfan are seizures. So to counteract this she has to take Ativan which is an anti-anxiety, take the edge off kind of medicine. When it's in full swing, Lynn is quite 'relaxed' and you don't want to assume that she's catching all of the details of your conversation :)
Today was a relatively quick day at the hospital. Just the two chemo meds and we're now home for the day. The nurses told us to expect the same tomorrow. Monday will be the start of another drug called ATG (or Rabbit - it's derived from rabbits). In all likelihood she'll have to start staying at the hospital over night then until the transplant.
Anyway, that's the update. Patient and caregivers are all doing fine. Lynn's sister arrived on Thursday and started her injections today - they help boost the production of her stem cells so that she has lots to give on Wednesday.
Enjoy your Saturday. We'll post again soon.
Irena (aka Iggy)
A couple of interesting notes - so far Lynn and her baby (the mega-bag of saline that she gets to lug around) are doing fine. Anything it takes so that she doesn't have to stay over night is fine by her - Gail almost got run over when it was time to go home last night. I forgot to warn her that when Lynn gets to go, she goes fast so they don't change their minds and keep her.
Some of the meds that Lynn has to take also make for interesting conversation. One of the possible side effects of Busulfan are seizures. So to counteract this she has to take Ativan which is an anti-anxiety, take the edge off kind of medicine. When it's in full swing, Lynn is quite 'relaxed' and you don't want to assume that she's catching all of the details of your conversation :)
Today was a relatively quick day at the hospital. Just the two chemo meds and we're now home for the day. The nurses told us to expect the same tomorrow. Monday will be the start of another drug called ATG (or Rabbit - it's derived from rabbits). In all likelihood she'll have to start staying at the hospital over night then until the transplant.
Anyway, that's the update. Patient and caregivers are all doing fine. Lynn's sister arrived on Thursday and started her injections today - they help boost the production of her stem cells so that she has lots to give on Wednesday.
Enjoy your Saturday. We'll post again soon.
Irena (aka Iggy)
Thursday, December 9, 2010
Day 3, or Day -6 to Transplant Day
Got my central line Tuesday so no more needles for a while which is great. Kind of a pain walking around with tubes hanging out of your chest but worth it in the long run. Wednesday was Busulfan test dose day. It's a chemo drug which they give you a little shot of and then monitor your blood for about 7 hours. So a long day in hospital. Today was the first day for another chemo called Fludarabane, which I've had a few times, so no unexpected side effects anticipated. Fortunately I had great company all three days thanks to Reina, Barb and Gail and got to come home overnight also thanks to having these babysitters. Tomorrow I get a dose of both along with 24 hour fluid injection. The hospital has a portable fluid pump so I can still come home overnight. The nurse told me it's like carrying a baby around all the time so should be interesting. All in all things are going well.
A side note, the picture of me with the big bus is from Columbia Icefields in August. I'm standing on a glacier that's thousands of years old. I drank some of the melt water, which I later regretted when the guide told us about finding the bodies of dead mountain climbers further up the adjoining glacier!
A side note, the picture of me with the big bus is from Columbia Icefields in August. I'm standing on a glacier that's thousands of years old. I drank some of the melt water, which I later regretted when the guide told us about finding the bodies of dead mountain climbers further up the adjoining glacier!
Saturday, December 4, 2010
All tests completed
Finally all of the pre-transplant tests are complete. Now it's keep eating and exercising so I'm in good shape for the transplant process. I'll be admitted to hospital Tues., Dec. 7 when I get my central line, so no more needles for a while which will be good. Chemo starts Dec. 8 through Dec. 14 and then anti-rejection drugs. I'm hoping I'll be able to come home each night until Dec. 13. Hospitals just aren't as restful as home!
Thursday, November 25, 2010
Thanks!
Just wanted to say thanks to everyone who has been so supportive through all of this journey. Whether it's kind thoughts, sending those good vibes, sending home meals, rides, whatever it has been, it's made a difference. We still have a ways to go, and we promise to keep you updated as the journey continues. Thank you! Irena (aka Iggy)
Tuesday, November 23, 2010
Learned some interesting things during our tour of the hospital ward. Foothills Hospital transplant unit doesn't believe isolation improves outcomes. So as long as I stay healthy I can have 'healthy' visitors. When I leave the unit I have to wear a mask but the hospital encourages patients to get a day or even overnight pass whenever I'm healthy enough. Foothills is known in the world as the hospital that will 'transplant on the sidewalk' because of this policy. Probably helps that it's so cold no bug can survive outside!
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